Dr. Ellis talked with me this morning with some good news. He said there COULD be a chance that I may be able to go home and MAYBE finish my last chemo treatment on the 19th as outpatient. It all depends on how my levels are coming back up. I am not getting my hopes up, but it’s good to know that could be a possibility. What was even better to know is what comes after the last treatment. I will get another bone marrow test, hopefully around the 26th. No matter the results of that, we start another round of chemo, although we don’t have a start date on that (ballpark 29th?). It’s pretty intensive as well, starting off with a spinal tap, but only requires me to be in the hospital on days 1-4 and 8-11 of treatment, instead of every day like I am now. That makes me happy.
Labs for the day:
Platelets: 29 (highest since I’ve been here)
However, if 12 is my lucky number, I guess it holds true that 13 is an unlucky one. Since day 12 was such an awesome day I didn’t want to be a Debby Downer and mention that every time I ran my fingers through my hair, it was coming out in strands of 10 or so hairs in each hand. Not chunks or clumps, but just the first noticeable traces of hair coming out.
I woke up at 5:30 this morning not able to go back to sleep. I think I was excited because my best friend Sara was coming down for the day. Then I chatted with my gal Patti (RN) for a while and we were getting emotional about a lot of different things which I guess sort of set the mood for the day. But then came shower time. I debated on whether or not I’d put this picture on the blog, but I guess I want to document it all, so here goes:
Sara didn’t know she was going to have to help me shave my head today. Surprise! She got into town around 12:30 and we had lunch from the Pasta House (thanks Chris!). We painted our nails and hung out for a couple hours in the afternoon before we decided to walk across the cat walk over National Ave to check out the Cancer Center. The gift shop there has head scarves and hats (I had ordered a few things online but they won’t be arriving at the house until early next week), and they also close at 4:30, the exact time we decided to arrive. We did a little window shopping, but I was just happy to leave my floor, even though I had to wear that stupid mask. I am not without some types of head coverings though, I got a scarf in the mail today from Laura J (college roommate) – great timing LJ! Also, last night when telling my RN Charity that my hair was starting to come out she brought me a really cute hat. On top of that, she found a scarf for me at the mall and brought it by on her day off. I would not be able to get through this if it weren’t for the awesome, awesome nurses and staff. They are all so wonderful.
So, it’s no wonder I broke down several times during the day today. I knew the day the hair came off was going to suck, but really it was just the anticipation of it that was the worst, because once we started, I felt a million times better. Mom came up a little after 5, John dropped Ryan off at his parents house, we ordered Imo’s (which they deliver directly to your hospital door), ate dinner, then the fun began.
We did mohawk, which John let me do to him too:
Then finally we just did the whole thing:
We blasted some Kings of Leon and had fun doing it. I’m so thankful of the timing of Sara’s visit, even though she wasn’t planning on staying as late as she did and I was worried to death about her driving back in tornado warnings. 20 years ago I never thought she’d be buzzing my head one day, but I am glad she was here to help me. 🙂
The good news, I think today is the low point, and it will only get better and easier from here. Thanks again for all of your love and support!